Resources

Trusted guides, organizations, and answers to help patients, families, and caregivers navigate sarcoma.

Patient Educational Materials

Download guides and patient information from trusted medical sources.

Helpful Links

National organizations and communities supporting sarcoma patients and families.

Frequently Asked Questions

What is sarcoma?

A sarcoma is a rare form of cancer that affects our connective tissues: bones, cartilage, fibrous tissue, fatty tissue, nerves, and vessels. The two main forms of sarcoma are bone and soft tissue.

How many people are diagnosed with sarcoma in the US per year?

There are ~3,000 bone sarcomas diagnosed per year in the United States and ~12,000 soft tissue diagnoses.

How do most sarcomas present?

Bone: progressive pain and a growing mass; occasionally present when the bone fractures. Soft tissue: typically a painless growing mass.

What are the most common bone sarcomas?

The three most common bone sarcomas are Osteosarcoma, Ewing’s sarcoma, and Chondrosarcoma.

What are some common subtypes of soft tissue sarcomas?

Liposarcoma, synovial sarcoma, fibrosarcoma, leiomyosarcoma, rhabdomyosarcoma, neurofibrosarcoma, undifferentiated pleomorphic sarcoma, and epithelioid sarcoma.

How are sarcomas treated?

Sarcomas require a multi-disciplinary treatment approach, combining wide surgical resection, radiation therapy techniques, and chemotherapy tailored to each patient and each diagnosis. Some general approaches include using wide surgical resection and radiation therapy for most large high-grade soft tissue sarcomas. The majority of Osteosarcoma and Ewing’s sarcoma patients are treated with multi-agent cytotoxic chemotherapy for several months and a wide surgical resection.

Have a question or need a resource we haven’t listed? Email us at sarcomastrong@gmail.com.

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